Monday I had a terrible experience with a doctor who told me that there was nothing wrong with me it was all in my head and if I lost some weight then I would be fine. Today I had a visit with another doctor (because I am not going back to the first one!) who listened to what I had to say understood what I was going through and while there is no cure for chronic fatigue there are treatments and she was able to help me start working on a couple.
As some of you who have followed my blog know I have been feeling progressively more and more tired and worn out and really like total crap for the last 3 years. Every time I went in to tell them I felt yucky was another round of tests and another round of specialists. I am grateful because we wouldn't have found my heart defect until I had a stroke had I not been going through all of this. I have had sinus surgery, tonsils out 2 sleep studies, heart surgery, I take iron, RLS medication, thyroid meds, anti depressants, and vitamins up the wazoo in a quest to feel like a human being again.
Diagnosing CFS is a process of elimination so it has been a long and frustrating 3 years. I have some new medication as well as a new eating, exercise and massage therapy plan. For the first time in a long time I feel like the doctors aren't saying well its all in your head just stop being tired, get more sleep and lose weight. Well dang I would if I could huh! I am grateful to have a diagnosis and some kind of treatment plan. Will I ever be running the Boston Marathon probably not but by dang I am going to be able to take my kids to the park or go on a field trip with their class.
Thanks for letting me ramble,
