Monday I had a terrible experience with a doctor who told me that there was nothing wrong with me it was all in my head and if I lost some weight then I would be fine. Today I had a visit with another doctor (because I am not going back to the first one!) who listened to what I had to say understood what I was going through and while there is no cure for chronic fatigue there are treatments and she was able to help me start working on a couple.
As some of you who have followed my blog know I have been feeling progressively more and more tired and worn out and really like total crap for the last 3 years. Every time I went in to tell them I felt yucky was another round of tests and another round of specialists. I am grateful because we wouldn't have found my heart defect until I had a stroke had I not been going through all of this. I have had sinus surgery, tonsils out 2 sleep studies, heart surgery, I take iron, RLS medication, thyroid meds, anti depressants, and vitamins up the wazoo in a quest to feel like a human being again.
Diagnosing CFS is a process of elimination so it has been a long and frustrating 3 years. I have some new medication as well as a new eating, exercise and massage therapy plan. For the first time in a long time I feel like the doctors aren't saying well its all in your head just stop being tired, get more sleep and lose weight. Well dang I would if I could huh! I am grateful to have a diagnosis and some kind of treatment plan. Will I ever be running the Boston Marathon probably not but by dang I am going to be able to take my kids to the park or go on a field trip with their class.
Thanks for letting me ramble,
6 comments:
Hugs, Carin! I'm glad you found a good doctor who would listen. Hope you get feeling better soon!
My sister Betsey has been home doing not-much-of-anything for four years, with no diagnosis beyond fatigue, and she just figured out she has a gluten intolerance. She's feeling tons better now, and getting up and walking four miles a day and all sorts of things. I hope you find the key for you!
Oh - I've been to that doctor . . . . I was told he retired (I had a little party in my mind *s*) Apparently he just left here and set up practice in your area. Couldn't be there's more than one doctor like that, can there?
What a difference a good doctor makes. I truly hope you can get to feeling better asap :)
I hope you will get better.
I too was once told a symptom was in my mind - NOT! I am glad you have found help and hope for a recovery!
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